Happy New Year to all of our OC Ataxia Support Group, LA Support Group members and their family and friends!
Our Annual Holiday party was well attended with most in festive hats and attire. If you missed it, make sure to get signed up for next years. Photo’s can be seen on our FB page Orange County Ataxia Support Group.
Thanks to the hard work of many, The OC Walk n’ Roll 2017 was a huge success reaching and surpassing our goal of $85,000. To date we have raised $86,979.00 and monies are still being taken until Dec. 31st for your 2017 tax deduction. “Save the Date” for the 2018 OC Walk n’ Roll, Sat. Sept.15th 2018 Yorba Linda, CA.
This past year, we have seen many exciting things happening in the research field especially for SCA 1,2 and 3. make sure you are registered in the CORD’s registry for latest trials for your type of Ataxia.samfordresearch.org/CoRDS
Saliva samples requested for SCA: 7,10,12 or DRPLA $200 for your participation contact: hannah.white@invitae.com
Keep your NAF membership current to find out the latest things happening in the Ataxia community www.ataxia.org
61st NAF Annual Ataxia Conference will be held April 5-6,2018 at the Marriott Philadelphia Downtown Philadelphia, PA. Registration is OPEN at www.ataxia.org
Listed are our 2018 OC Support Group Meeting dates: January 20th planning meeting. This will be for anyone that would like to take an active role in the support group and/or has input for what you would like to see or hear about for the upcoming year. Please RSVP to http://cindyocataxia.org if you plan to attend. Once we know about how many we will choose the meeting place.
Feb. 17th OC Support group meeting
April 5,6 Annual Conference- Philadelphia
April. 21st OC Support group meeting
June 16th Pizza Party- TBA
Aug 18th OC Support Group Meeting & Pizza Party
Sept. 15th OC Walk n’ Roll Yorba Linda
Oct. 20th OC support group meeting
TBA (Tentative date shown) Nov. 17th LA Group hosting Dr. Fogel TBA
Dec. 1st Holiday Party- Marie Callender’s Fountain Valley